Charmaine Royal
  • Charmaine Royal

  • Associate Professor in the Department of African and African American Studies
      • Duke Box 90252, Durham, NC 27708
      • 234 Friedl Bldg, Box 90252, Durham, NC 27708-0141
      • Phone: (919) 668-6515
      • Email:
      • Office Hours: By appointment
  • Overview

    Charmaine Royal is a geneticist and bioethicist whose research and teaching focus on ethical and social issues in genetics and genomics, particularly the intersection of "race" and genetics, its policy implications, and practical interventions. Her primary research areas include genetic ancestry inference, public and professional conceptions and uses of race, and gene-environment interactions. She is director of the Duke Center on Genomics, Race, Identity, Difference (GRID) that aims to influence and transform the concepts, uses, and impacts of race in the conduct of scientific and scholarly research, the practice of medicine, and the lives of individuals, communities, and societies.


         

  • Education

    • Ph.D., Howard University 1997
    • M.S., Howard University 1992
  • Awards and Honors

    • Thomas Langford Lectureship Award . Duke University., 2013
    • Greenwall Faculty Scholar in Bioethics. Greenwall Foundation., 2009
  • Professional Activities

    • Presentation
      • Ethics in Sickle Cell Disease Prenatal Testing and Paternity. Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia (CAREST). Kingston, Jamaica. January 2016
      • Race in Science and Medicine. Public Responsibility in Medicine & Research (PRIM&R) Advancing Ethical Research Conference. Baltimore, MD. December 2014
      • Genomics, Ancestry, and Identity. Darwin Seminar. University of Cape Town. Cape Town, South Africa. October 2013
      • Genetic and Genomic Ancestry Inference. Bioethics Grand Rounds, Baylor College of Medicine. Houston, TX. April 2013
      • (Re) Conceptualizing Identity and Kinship: Insights from genetic ancestry testing. Claiming Kin. 9th Annual MU Life Sciences and Society Symposium. University of Missouri – Columbia. Columbia, MO. March 2013
      • Returning Genomic Research Results. Human Heredity and Health in Africa (H3Africa) Consortium Meeting. Addis Ababa, Ethiopia. October 1, 2012
      • Running with the Trait: ethical and societal implications of mandatory testing of athletes for sickle cell trait. ”. 31st Annual Education Conference of the National Society of Genetic Counselors. Boston, MA. October 1, 2012
      • Toward Precision Medicine: Building a Knowledge Network for Biomedical Research and a New Taxonomy of Disease. 14th Annual Meeting of the American Society for Bioethics and Humanities. Washington, DC. October 1, 2012
      • Precision Medicine. Meeting of the Standing Committee on Use of Emerging Science for Environmental Health Decisions. Washington, DC. April 1, 2012
      • Sickle Cell Disease. Preconception Peer Education Spring Update. North Carolina Division of Public Health. Greensboro, NC. March 1, 2012
      • Ethical Issues in Conducting Genetic and Genomic Research in Peoples of African Descent. Genetics of the Peoples of Africa and the Transatlantic African Diaspora. UNC - Chapel Hill, NC. March 1, 2012
      • Genomic Research on Sickle Cell Disease: ethical and societal implications in the U.S.. NIH Workshop on Genomic Approaches for Studying Sickle Cell Disease. San Diego, CA. December 1, 2011
      • Lessons from BiDil. Novartis Institutes of Biomedical Research. Boston, MA. May 1, 2011
      • Race, Genetics, and Health: implications for research and medical practice. Race, Genetics, Medicine and Health Disparities Symposium. Wake Forest University, NC. March 2011
      • Implications of the American Society of Human Genetics (ASHG) Ancestry Inference Report. 6th International Conference on Genetic Genealogy. Houston, TX. October 2010
      • Ethical and Social Issues in Sickle Cell Counseling. Framing the Research Agenda for Sickle Cell Trait Workshop. National Institutes of Health, Bethesda, MD. June 2010
      • Genomics and Health Disparities: Ethical and Social Considerations. 8th Annual Disparities in Health in America Workshop. University of Texas M.D. Anderson Cancer Center, Bethesda, MD. June 2010
      • Race and Human Genetic Variation. Environmental Protection Agency (EPA) Symposium on the Science of Disproportionate Environmental Health Impacts. Bethesda MD. March 2010
      • Genetic Ancestry Testing: Troubling Concepts of Race and Identity. 2009-2010 Colloquium Series, The University of New Mexico. Albuquerque, NM. November 2009
      • Engagement, Informed Consent and Benefit Sharing. Frontiers Meeting - Genetic Diversity in Health and Disease in African Populations. Yaounde, Cameroon. March 2009
      • Genetics, Genomics, and Ancestry: Implications for Social Identity and Social Justice. Fisher Center Lecture Series, Hobart and William Smith Colleges. Geneva, NY. April 2008
      • Genomic Ancestry Testing: Probing Notions of Identity and Kinship. Annual Meeting of the American Society of Human Genetics, Presidential Symposium. San Diego, CA. October 2007
      • Identity and identification in Genomic/Genetic Studies of Common Diseases. Genomics of Common Diseases Conference. Hinxton, UK. July 2007
      • Genes, Environment, and Human Variation: Does ‘race’ have a place?. Race, Human Variation, and Disease Conference, American Anthropological Association RACE Project. March 2007
      • Genetic Ancestry Testing in African Americans: Cure for the identity crisis?. Sawyer Seminar, Duke University. February 2007
      • Genomics and Personalized Medicine: what’s “race” got to do with it?. Annual Convention of the National Medical Association. August 2006
      • Ethical Implications of Ancestry Testing and Genetic Identity. 75th Annual Meeting of the American Association of Physical Anthropologists. March 2006
      • Alternatives to Using ‘Race’ as a Population Descriptor in Research. 55th Annual Meeting of the American Society of Human Genetics. October 2005
      • Ethical, Legal, and Social Issues in Genomic Research and Medicine. Eliminating Health Disparities in Mississippi: From Research to Action. Jackson State University. October 2005
      • HapMap Nigeria: Engaging the Yoruba in Aba-Alamu. 8th Annual Meeting of the American Society for Bioethics and Humanities. October 2005
      • The Illusion of Inclusion. FDA Hearing on the Approval of BiDil. June 2005
      • Ethical, Legal, and Social Implications of Human Genetics/Genomic Research. Annual Black Health Professional Meeting. May 2005
      • Race, Genomics, and Health. Rock Ethics Institute, The Pennsylvania State University. April 2005
      • Bioethics and Genetics: A Case of and for Symbiosis. Joint Meeting of the Southern African Society of Human Genetics and the African Society of Human Genetics. March 2005
      • Genomic Medicine at Bedside: Privacy and Confidentiality of Genetic Information. Annual Meeting of the Association of Academic Minority Physicians. October 2004
      • Emerging Issues in Population Genomics. Arizona State University. October 2004
      • The Ethical, Legal, and Social Implications of ‘Race'. 54th Annual Meeting of the American Society of Human Genetics. October 2004
      • Ethical, Legal, and Social Implications of Genomic Research and Medicine. 102nd Annual Convention and Scientific Assembly of the National Medical Association. August 2004
      • Informed Consent for Research in Minority Communities. AAAS Minority Science Writers Workshop. August 2004
      • HapMap in Nigeria: The Community Engagement Process. The International HapMap Consortium Meeting. May 2004
      • Ethical, Legal, and Social Implications of Human Genomic/Genetics Research. Joint Center for Political and Economic Studies. November 2003
      • Genes and Race: Implications for the Future of Clinical Research/Practice. Johns Hopkins University Greenwall Fellowship Program. Washington DC. May 2003
      • Race/Ethnicity and Genetics in the Newborn Screening Context. Ethical Issues in Newborn Screening. Hastings Center Meeting. Baltimore, MD. October 2002
      • Human Genome Research & Cultural Competence. National Medical Association Annual Convention and Scientific Assembly. Honolulu HI. August 2002
      • Ethics and African American Genealogy. Powderhorn/Phillips Cultural Wellness Center- African Genealogy & Genetics: Looking Back to Move Forward. Minneapolis MN. June 2002
      • Ethical, Legal and Social Issues of the Human Genome Project. Zeta Phi Beta Sorority, Inc., Beta Theta Zeta Chapter’s Human Genome Conference. Norfolk, VA. April 2002
      • Genetics Research and Communities of Color: The Good, the Bad and the Ugly. West Harlem Environmental Action’s conference on Human Genetics, Environment, and Communities of Color: Ethical and Social Implications. New York, NY. February 2002
      • People of Color as Partners and Leaders in Human Genome Research. 4th Annual Meeting of the American Society for Bioethics and Humanities. Nashville TN. November 2001
      • Health Disparities and Human Genome Research. Zeta Phi Beta Sorority National Educational Foundation - Human Genome Project Conference. Washington, DC. November 2001
      • Human Genome Research and Cultural Competence. National Medical Association Planning Meeting. Honolulu, HI. October 2001
      • Health Disparities: How Should the Black World Respond?. Racism and the Black World Response Symposium. Nova Scotia, Canada. August 2001
      • Ethics and Special Populations Research. FAES (Foundation for Advanced Education in the Sciences) Medical Genetics Course, National Human Genome Research Institute, National Institutes of Health. Bethesda, MD. March 2001
      • Human Genome Project and Its Implications for African Americans. 26th Annual NAFEO (National Association for Equal Opportunity in Higher Education) Conference. Washington, DC. March 2001
      • Participating in Genetic Research. Second Annual National Human Genome Research Institute Consumer Day, National Institutes of Health. Bethesda, MD. November 2000
      • Societal Perspectives on Advances in Genetic Research and Technologies. Third National Conference on Genetics and Public Health. Ann Arbor, MI. September 2000
      • Risks and Benefits of Participating in Genetics Research. First Community Consultation on the Responsible Collection and Use of Samples for Genetic Research, National Institutes of Health. Bethesda, MD. September 2000
      • Ethics. National Human Genome Research Institute Genomics Short Course, National Institutes of Health. Bethesda, MD. August 2000
      • The Human Genome Project: Legal Implications for Diverse Populations. National Association of Women Judges Conference: Bioethical Issues and Judging. Washington, DC. March 2000
      • Ethical Considerations in the Era of the ‘New Genetics’. Planned Parenthood Visioning Leadership Conference: Voyage to 2025. Marco Island, FL. January 2000
      • African American Perspectives on Issues of Genetics Research and Testing. Second National Conference on Genetics and Disease Prevention. Baltimore, MD. December 1999
      • Group Rights in Genetic Research: What Can That Mean and How Do We Respond. 2nd Annual Meeting of the American Society for Bioethics and Humanities. Philadelphia, PA. October 1999
      • SES, Health Disparities, and Genetic Susceptibility. Concept Forum on SES and Health Disparities, National Institutes of Health. Bethesda, MD. March 1999
      • Involvement of African Americans in Human Genetics Research. Workshop on Anthropology, Genetic Diversity, and Ethics. Milwaukee, WI. February 1999
      • Coping Strategies in Families of Children with Sickle Cell Disease. 48th Annual Meeting of the American Society of Human Genetics. Denver CO. October 1998
      • Ethical Issues in Genetic Studies. Howard University Cancer Center Prostate Cancer Symposium. Bethesda, MD. September 1998
      • Ethical, Legal, and Social Implications of the Human Genome Project. Cleft-Palate/Craniofacial Association Meeting. Baltimore, MD. April 1998
      • Inclusion of Ethnic/Racial Minorities in Bio-Medical Research: Benefits, Risks and Challenges. National Dialogue on Genetics. College Park, MD. March 1998
      • Implications of Cystic Fibrosis Testing in African Americans. Genetic Testing for Cystic Fibrosis Consensus Development Conference Follow-up Workshop. Bethesda, MD. October 1997
      • Human Genome Project: Ethical and Social Issues. National Institutes of Health Mini-Med School. Washington, DC. October 1997
    • Service to the University
      • Associate Director. Graduate Studies, African & African American Studies . 2016
      • Faculty Diversity Task Force Diversity Implementation Committee. 2015 - 2016
      • Chair. Curriculum Committee. African & African American Studies . 2015
      • Faculty Governance Committee. Duke Initiative for Science and Society. 2015
      • Director. Science & Society Certificate Program. Trinity College of Arts and Sciences. 2015
      • Spring Break Course Committee. 2015
      • Search Committee for Dean of Arts and Sciences. 2014 - 2015
      • Graduate Studies Committee. African & African American Studies . 2014
      • Admissions Committee. MD-MS CTSA Scholars Program, School of Medicine. 2014
      • Admissions Committee. MA in Bioethics & Science Policy, Duke Initiative for Science and Society . 2013
      • Faculty Council. MA in Bioethics & Science Policy, Duke Initiative for Science and Society . 2013
      • Joint faculty position for the Department of Cultural Anthropology and the Institute for Genome Sciences & Policy. Search Committee. 2012
      • Faculty Director. Reginaldo Howard Memorial Scholarship Program, Office of Undergraduate Scholars and Fellows . 2012
      • Center for African and African American Research. Cultural Competence in Healthcare Program Committee. 2011 - 2015
      • Arts and Sciences Council. Representative for the Department of African & African American Studies . 2011 - 2014
      • Curriculum Committee. Institute for Genome Sciences & Policy. 2011 - 2014
      • Faculty Nominating Committee. Institute for Genome Sciences & Policy. 2011 - 2014
      • IRB Reviewer. Institute for Genome Sciences & Policy. 2011 - 2014
      • Difference Working Group. Franklin Humanities Institute and Office of Institutional Equity. 2011 - 2012
      • Advisory Board Member. Center for the Study of Race, Ethnicity and Gender in the Social Sciences (REGSS). 2009 - 2014
    • Service to the Profession
      • Data Access Committee. African Partnership for Chronic Disease Research. 2014
      • Editorial Board. Ethnicity and Health. 2013
      • Advisory Committee. Underrepresented Minority Postdoctoral Enrichment Program, Burroughs Wellcome Fund . 2012 - 2015
      • Genome Exhibition Advisory Board. National Human Genome Research Institute and National Museum of Natural History. 2012
      • Independent Expert Committee. Human Heredity and Health in Africa (H3Africa) Program. National Institutes of Health and the Wellcome Trust Genome Exhibition Advisory Board, National Human Genome Research Institute and National Museum of Natural History. 2012
      • International Scientific Advisory Board (ISAB). Kenya Medical Research Institute (KEMRI)-Wellcome Trust Research Programme. 2011 - 2014
      • Board of Directors. Public Responsibility in Medicine and Research (PRIM&R). 2011 - 2012
      • Vice-Chair : Worldwide Initiative on Social Studies of Haemoglobinopathies. 2011 - 2011
      • Data and Safety Monitoring Board/Observational Study Monitoring Board (DSMB/OSMB). National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), NIH. 2011
      • Expert Panel. Grand Challenges in Genomics for Public Health in Developing Countries (Grand Challenges) Project. World Health Organization. 2011
      • Vice-Chair. Worldwide Initiative on Social Studies of Haemoglobinopathies. 2011
      • Steering Committee. Registry and Surveillance System for Hemoglobinopathies (RuSH), Centers for Disease Control and Prevention and National Heart, Lung, and Blood Institute. 2010 - 2015
      • Steering Committee. Co-Chair, Patient Centered Care Collaboration to Improve Minority Health, Office of Minority Health, DHHS. 2010 - 2013
      • Communicable Diseases Working Group. Human Heredity and Health in Africa (H3Africa) Program, National Institutes of Health and the Wellcome Trust. 2010 - 2012
      • Committee on Framework for Developing a New Taxonomy of Disease. National Research Council, National Academies. 2010 - 2012
      • ELSI and Samples Working Group. 1000 Genomes Project, National Human Genome Research Institute (NHGRI), NIH. 2010
      • Ethics Advisory Board. Jackson Heart Study, National Heart Lung and Blood Institute, NIH. 2010
      • Medical Genetics Working Group. National Center for Biotechnology Information, NIH. 2010
      • Diversity and Minority Inclusion Work Group. Genomic Medicine Program, US Department of Veterans Affairs . 2009 - 2014
      • Advisory Committee. Genetics for Social and Behavioral Science Researchers Initiative, Office of Behavioral and Social Sciences Research, NIH. 2009 - 2013
      • Social Issues Committee. Chair, Social Issues Committee, American Society of Human Genetics. 2009 - 2011
      • Nominating Committee. American Society of Human Genetics. 2009 - 2010
      • Genomic Data Sharing Task Force, Chair. Secretary's Advisory Committee on Genetics, Health, and Society, DHHS. 2009 - 2010
      • Task Force on Genetic Ancestry and Ancestry Testing. American Society of Human Genetics . 2008 - 2010
      • Advisory Committee to the NIH Director’s Working Group on Participant and Data Protection for the Genetic Association Information Network (GAIN). NIH. 2007 - 2010
      • Social Issues Committee. American Society of Human Genetics. 2006 - 2012
      • Genetics and Genealogy Working Group. Harvard University. 2005 - 2015
      • Advisory Committee on Genetics, Race, and Health Care. National Coalition for Health Professional Education in Genetics. 2005 - 2010
      • Editorial Board. The American Journal of Bioethics. 2005
      • African American Accrual Advisory Board. GlaxoSmithKline. 2003 - 2007
      • Ethics Committee. African Society of Human Genetics. 2003
      • Bioethics Advisory Committee. March of Dimes Foundation. 2002
      • Cultural Competency Advisory Committee. National Medical Association. 2001 - 2006
      • ELSI and Methods Working Groups. International Haplotype Map Project, National Human Genome Research Institute, NIH . 2001 - 2003
      • Advisory Committee. Genome Minority Outreach Video for Inclusive Education, National Human Genome Research Institute, NIH. 2001 - 2002
      • Board of Directors. Genetic Alliance. 2001 - 2002
      • Community Issues Subcommittee. Pharmacogenomics Network Steering Committee, National Institute of General Medical Sciences, NIH. 2001 - 2002
      • Planning Committee. 4th Annual Meeting, American Society for Bioethics and Humanities . 2001
      • Diversity and Cultural Competence Working Group. National Coalition for Health Professional Education in Genetics. 2000 - 2005
      • Steering Committee. African American Hereditary Prostate Cancer Study Network. 1998 - 2003
      • Institutional Review Board. National Human Genome Research Institute, NIH. 1998 - 2000
      • Bioethics Education Materials and Resources Subcommittee. NIH . 1998 - 1999
      • Diverse Populations Working Group. National Human Genome Research Institute, NIH. 1997 - 1998
      • GenEthics Consortium Steering Committee. 1997 - 1998
  • Selected Publications

  • Selected Grants

    • Public Perspectives and Experience Regarding Genetic Ancestry Testing 2012 - 2016
    • Perspectives and Experience Regarding the NCAA Sickle Cell Trait Testing 2013 - 2015
    • Ethics as a Guide for the Use of "Race" and Ancestry in Research and Clinical Practice 2009 - 2015